37 research outputs found
902-P: Introducing Continuous Glucose Monitoring Technology at Diagnosis in Pediatric Type 1 Diabetes: A Proof-of-Concept Study
Diabetes technology is changing and integral for diabetes care. Our hypothesis is patients who start using continuous glucose monitoring (CGM) technology at diagnosis will have better clinical outcomes and higher levels of satisfaction and lower levels of burden than patients who initiate CGM therapy later in the course of their disease management.
Methods: This quality improvement study offered Freestyle Libre CGM to all patients newly diagnosed with T1D. The primary outcome was improvement in self-reported treatment satisfaction as measured by the Diabetes Treatment Satisfaction Questionnaire-Parent (DTSQ-P). Secondary outcomes included adolescent treatment satisfaction, fear of hypoglycemia, diabetes distress, burden, and QOL. Measures were given at baseline and 3 months. Data for participants was compared with retrospective data from age-matched controls who did not receive a Libre at diagnosis.
Results: 26 parent-child dyads between the ages of 4-17 years old participated in the study. Preliminary results showed improved DTSQ-parents scores 47.1 ± 8.0 to 50 ± 9.9 over the 3 month study. Please see tables for parent and child version of DTSQ- DDS, PedQL, FOH, PAID results.
Conclusions: There were trends towards improved satisfaction and QOL scores. This shows supportive data for improved quality and satisfaction measures in using CGM technology starting at diagnosis.
Disclosure
P. Hiers: None. J. Adams: None. S.L. Filipp: None. M.J. Haller: Advisory Panel; Self; SAB Biotherapeutics, Inc.
Funding
Diabetes Action Research and Education Foundation (468)
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School Nurse Perspectives on Do-It-Yourself Automated Pancreas Systems in the School Setting
Lower Balonne Scoping Study Environment Theme
"January 2006".Project Number: Environmental Review of the Lower Balonne Floodplain - M/BUS/93.MDFRC item.The Lower Balonne system extends from St George in Queensland to the Barwon River in northern NSW. The Lower Balonne system begins as a single channel of the Balonne River downstream of Beardmore Dam at St George in Queensland and extends to the Barwon River in New South Wales. Water is pumped from the rivers and distributary channels of the Lower Balonne during flood periods and flood overflows are diverted to storage for crop irrigation, mainly cotton. (Cullen et al. 2003). Consequently, modification of the natural flow regimes are likely to impact on the ecological communities of the rivers, floodplains and wetlands of the Lower Balonne system (McCosker 1996). The Queensland Water Resource (Condamine Balonne) Plan 2004 includes a strategy for event-based management to deliver flows to the Lower Balonne floodplain, especially to ensure that adequate flows reach the Ramsar-listed Narran Lake Nature Reserve to meet Australia’s international obligations under the Ramsar Convention. The Water Resource Plan proposes requires a comprehensive review five years after commencement, which must assess the effectiveness of the plan’s performance indicators, including event-based management rules, in delivering the desired outcomes of the plan. This Scoping Study is intended to assist in addressing the water needs of the Lower Balonne Floodplain as well as providing input to the upcoming five-year review. Cullen et al. (2003) identified important ecological assets in the Lower Balonne that need to be managed in terms of water resource planning. These assets are “the biota of the rivers, distributary channels and wetlands of the Lower Balonne, the internationally recognised Narran Lakes, the National Parks of the Culgoa floodplain, and the Darling River itself”. This review excludes examining the knowledge concerning the Narran Lakes as this has previously been reviewed by Thoms et al. (2003) and is currently under an extensive ecosystem study; and the Darling River itself, which is outside the scope of this brief. The floodplains of the Lower Balonne comprise a complex mosaic of vegetation communities. These include important native grassland, shrubland and woodland communities of riparian and floodplain habitats, with the floodplains of the Culgoa, Birrie and Narran rivers supporting the largest area of native grasslands in New South Wales (Dick, 1993). The plant communities in the Lower Balonne are reliant on intermittent flooding for recruitment and survival. Compared with River Red Gums, little data is available on the water requirements of key floodplain vegetation species found on the Lower Balonne floodplain, such as Coolibah, Black Box and Lignum, although the latter is a component of the Narran Lakes Project (Narran Lakes Newsletters http://mooki.canberra.edu.au/narran).Vertebrate fauna surveys of the Coolibah floodplains of the Birrie and Culgoa (NSW reaches) record 19 species of native mammal, 112 birds, 23 reptiles and 6 frogs, while the trees themselves supply a habitat and refuge for a variety of mammals, birds and reptiles (Dick and Andrew 1993). The aquatic invertebrate and fish communities throughout the lowland catchment of the Darling River are considered threatened (NSW Fisheries Management Act 1994). One aquatic invertebrate, four fish and four water bird that have been listed under either federal (EPBC) or NSW legislation as threatened, vulnerable or endangered are recorded within the Lower Balonne system. A large amount of data about the Lower Balonne floodplain has been collected, although some of it is not readily accessible. It also varies widely in both temporal and spatial scales, as well as in quality and purpose of collection. These factors make it difficult to compare and relate the different sets of data in order to draw conclusions about the ecological condition of the Lower Balonne floodplain. There are some different conclusions drawn by the Technical Advisory Panel (TAP) to the WAMP, the Cullen report, and subsequent research regarding the ecological condition of the Lower Balonne system. The TAP report suggests that the biotic communities, particularly fish and invertebrates are moderately degraded in the lower sections of the Balonne systems and indicate that modification of the natural flow regime is a potential cause. The Cullen Report (Cullen et al. 2003) suggests that there is no scientific evidence to indicate that these communities are currently degraded to any extent but have not yet felt the impact of water resource development that occurred in the 1990’s. However, it is clear that flow dependent assets may suffer from the impacts of water resource development. Therefore it is recommended that: 1. All ecological assessments must take on a whole of catchment approach, therefore including the NSW portion of the Lower Balonne system; 2. The NSW portion of the Lower Balonne system must be assessed with the same rigour as QLD portion in terms of the number of sites monitored; 3. There should be an overarching continuity of the ecological assets assessed, even if it is to be divided amongst available expertise of various agencies i.e. riparian vegetation, macrophytes, fish, macroinvertebrates, water birds, frogs, turtles; and 4. Rigorous re-analysis of the annual monitoring data by SKM and EM in terms of indicators used and statistical significances of between-site variations.Defining the environmental water requirements for the Lower Balonne is difficult due to the absence of published scientific work (Cullen et al. 2003) and there is limited specific knowledge of the water requirements of most flood dependent ecosystems and biota. To effectively manage flood dependent ecosystems, we need knowledge of: 1. How flooding and drying influence habitat availability 2. How flooding and drying influence the movement and dispersal of biota (fish, invertebrates, plants) within floodplain ecosystems 3. How flooding and drying trigger recruitment for a suite of biota (i.e. germination of plants) 4. What is the role of flooding and drying in maintaining biodiversity 5. How connectivity between riverine and floodplain environments influences carbon and nutrients dynamics 6. What extent of floodplain needs to be inundated to support viable riparian communities 7. What extent of wetland needs to be inundated to conserve “X” amount of biodiversity 8. What is the cost to the community as a consequence of lost productivity of flood plain ecosystems 9. What are the commence to flow values for flood-dependent wetlands In light of the considerable knowledge gaps and the lengthy time lag before the impacts of changes become apparent, it is critically important that the Precautionary Principle should be followed. There are many contradictions in the interpretation of the limited data available for the Lower Balonne system, with no direct link able to be made between modification to the hydrology due water extraction and water storages and possible degradation of the biotic communities. However both the TAP Report (QLD DNR 2000) and the Cullen Report (Cullen et al. 2003) both stress that if the current level of water extraction continues, in all likelihood there will be substantial impacts on the biota of the channels and floodplains that comprise the Lower Balonne system. It needs to be acknowledged that there will be a considerable time lag between changes in water extraction and biological responses and the impact of current water extraction may not be detectable for many years due to the inherent natural variation in flows (QLD DNR 2000; Cullen et al. 2003).Research and monitoring recommendations Recommendation 1 - A joint taskforce of Qld and NSW natural resource agencies develop a cohesive monitoring program following the approach suggested by Scholz et al. (2005) in designing monitoring programs (Appendix 4). This program would require the full support of state agencies and community groups and developed within an adaptive management framework with clearly stated objectives and testable hypotheses. The monitoring program would eventually be able to describe the current condition and give an assessment of the biodiversity, abundance and community composition of instream and floodplain biota. The information gained from such surveys can then be used by managers to determine the extent of floodplain that needs to be inundated to preserve a proportion of the associated biodiversity (i.e. surveys might indicate that 20% of the floodplain area needs to be inundated for three months to preserve 90% of the current biodiversity). Recommendation 2 - A detail investigation is carried out to determine the watering requirements for Coolibah and Lignum plant communities. This investigation should use a combination of tradition plant survey methods combined with measurements of changes in plant vigour (or health) using remote sensing techniques. Recommendation 3 - A detailed investigation on the rates of sedimentation within the Lower Balonne under different flow regimes be undertaken. There is little knowledge of what the critical ecological processes in riverine and floodplain habitats are or how changes to the flooding regime may affect primary productivity and the exchange of material between components. Over the forthcoming years, the floodplain and riverine environments will experience a range of flood frequencies and intensities in response to increased water extraction and changing climatic conditions. Recommendation 4 - A detailed investigation be undertaken of the role of connectivity between the river channels of the Lower Balonne and associated floodplains and wetlands and three critical metabolic functions (primary production, nutrient cycling and decomposition).The study would examine the response of each component to inundation to dete
Videoconference Based Training on Diabetes Technology for School Nurses and Staff: Pilot Study
COVID-19 Pandemic Effects on Caregivers of Youth With Type 1 Diabetes: Stress and Self-Efficacy
<b>Background. </b>Little is known about the coronavirus disease 2019 (COVID-19)
pandemic’s psychological effects on caregivers of children with type 1
diabetes.
<p><strong>Objective. </strong>This study aimed to investigate the experience of caregivers
of youth with type 1 diabetes during the COVID-19 pandemic.</p>
<p><strong>Methods.</strong> A 49-item questionnaire using a 5-point Likert scale
and open-response questions was distributed via email and type1 diabetes–related
social media platforms from 4 May to 2 June 2 2020. Quantitative data were
analyzed using SPSS v.25 statistical software. Descriptive statistics
were used. Relationships were compared using Pearson correlation.
Qualitative data were coded and categorized.</p>
<p><strong>Results.</strong> A total of 272 caregivers participated (mean ± SD respondent
age 42.1 ± 7.8 years; 94.5% females; 81.3% with college degree or higher; 52.6%
with annual income >$99,000; 80.1% with private insurance). The mean ± SD age
of caregivers’ children with type 1 diabetes was 11.0 ± 4.1 years, and their mean
± SD diabetes duration was 4.2 ± 3.5 years. Participants reported being
diagnosed with or knowing someone with COVID-19 (24.6%), increased stress
(71.9%), job loss (10.3%), and financial difficulty (26.8%) as a result of the
pandemic. General self-efficacy scores were high (mean ± SD 16.2 ± 2.6, range 8–20)
and significantly correlated with COVID-19–related self-efficacy (mean ± SD 12.6
± 2.1; <i>R </i>= 0.394, <i>P </i><0.001) and type 1 diabetes
self-efficacy during COVID-19 (mean ± SD 17.1 ± 2.5; <i>R</i> = 0.421, <i>P </i><0.001).</p>
<p><strong>Conclusion. </strong>Despite reporting high overall self-efficacy, caregivers of children
with type 1 diabetes reported greater overall stress and challenges during the
pandemic. Health care providers should be prepared to provide families with
specific social and mental health support.<b></b></p></jats:p
COVID-19 Pandemic Effects on Caregivers of Youth With Type 1 Diabetes: Stress and Self-Efficacy
Background
Little is known about the coronavirus disease 2019 (COVID-19) pandemic’s psychological effects on caregivers of children with type 1 diabetes.
Objective
This study aimed to investigate the experience of caregivers of youth with type 1 diabetes during the COVID-19 pandemic.
Methods
A 49-item questionnaire using a 5-point Likert scale and open-response questions was distributed via e-mail and type 1 diabetes–related social media platforms from 4 May to 22 June 2020. Quantitative data were analyzed using SPSS v.25 statistical software. Descriptive statistics were used. Relationships were compared using Pearson correlation. Qualitative data were coded and categorized.
Results
A total of 272 caregivers participated (mean ± SD respondent age 42.1 ± 7.8 years; 94.5% females; 81.3% with college degree or higher; 52.6% with annual income >$99,000; 80.1% with private insurance). The mean ± SD age of caregivers’ children with type 1 diabetes was 11.0 ± 4.1 years, and their mean ± SD diabetes duration was 4.2 ± 3.5 years. Participants reported being diagnosed with or knowing someone with COVID-19 (24.6%), increased stress (71.9%), job loss (10.3%), and financial difficulty (26.8%) as a result of the pandemic. General self-efficacy scores were high (mean ± SD 16.2 ± 2.6, range 8–20) and significantly correlated with COVID-19–related self-efficacy (mean ± SD 12.6 ± 2.1; R = 0.394, P <0.001) and type 1 diabetes self-efficacy during COVID-19 (mean ± SD 17.1 ± 2.5; R = 0.421, P <0.001).
Conclusion
Despite reporting high overall self-efficacy, caregivers of children with type 1 diabetes reported greater overall stress and challenges during the pandemic. Health care providers should be prepared to provide families with specific social and mental health support
COVID-19 Pandemic Effects on Caregivers of Youth With Type 1 Diabetes: Stress and Self-Efficacy
Background
Little is known about the coronavirus disease 2019 (COVID-19) pandemic’s psychological effects on caregivers of children with type 1 diabetes.
Objective
This study aimed to investigate the experience of caregivers of youth with type 1 diabetes during the COVID-19 pandemic.
Methods
A 49-item questionnaire using a 5-point Likert scale and open-response questions was distributed via e-mail and type 1 diabetes–related social media platforms from 4 May to 22 June 2020. Quantitative data were analyzed using SPSS v.25 statistical software. Descriptive statistics were used. Relationships were compared using Pearson correlation. Qualitative data were coded and categorized.
Results
A total of 272 caregivers participated (mean ± SD respondent age 42.1 ± 7.8 years; 94.5% females; 81.3% with college degree or higher; 52.6% with annual income &gt;$99,000; 80.1% with private insurance). The mean ± SD age of caregivers’ children with type 1 diabetes was 11.0 ± 4.1 years, and their mean ± SD diabetes duration was 4.2 ± 3.5 years. Participants reported being diagnosed with or knowing someone with COVID-19 (24.6%), increased stress (71.9%), job loss (10.3%), and financial difficulty (26.8%) as a result of the pandemic. General self-efficacy scores were high (mean ± SD 16.2 ± 2.6, range 8–20) and significantly correlated with COVID-19–related self-efficacy (mean ± SD 12.6 ± 2.1; R = 0.394, P &lt;0.001) and type 1 diabetes self-efficacy during COVID-19 (mean ± SD 17.1 ± 2.5; R = 0.421, P &lt;0.001).
Conclusion
Despite reporting high overall self-efficacy, caregivers of children with type 1 diabetes reported greater overall stress and challenges during the pandemic. Health care providers should be prepared to provide families with specific social and mental health support.
</jats:sec
COVID-19 Pandemic Effects on Caregivers of Youth With Type 1 Diabetes: Stress and Self-Efficacy
<b>Background. </b>Little is known about the coronavirus disease 2019 (COVID-19)
pandemic’s psychological effects on caregivers of children with type 1
diabetes.
<p><strong>Objective. </strong>This study aimed to investigate the experience of caregivers
of youth with type 1 diabetes during the COVID-19 pandemic.</p>
<p><strong>Methods.</strong> A 49-item questionnaire using a 5-point Likert scale
and open-response questions was distributed via email and type1 diabetes–related
social media platforms from 4 May to 2 June 2 2020. Quantitative data were
analyzed using SPSS v.25 statistical software. Descriptive statistics
were used. Relationships were compared using Pearson correlation.
Qualitative data were coded and categorized.</p>
<p><strong>Results.</strong> A total of 272 caregivers participated (mean ± SD respondent
age 42.1 ± 7.8 years; 94.5% females; 81.3% with college degree or higher; 52.6%
with annual income >$99,000; 80.1% with private insurance). The mean ± SD age
of caregivers’ children with type 1 diabetes was 11.0 ± 4.1 years, and their mean
± SD diabetes duration was 4.2 ± 3.5 years. Participants reported being
diagnosed with or knowing someone with COVID-19 (24.6%), increased stress
(71.9%), job loss (10.3%), and financial difficulty (26.8%) as a result of the
pandemic. General self-efficacy scores were high (mean ± SD 16.2 ± 2.6, range 8–20)
and significantly correlated with COVID-19–related self-efficacy (mean ± SD 12.6
± 2.1; <i>R </i>= 0.394, <i>P </i><0.001) and type 1 diabetes
self-efficacy during COVID-19 (mean ± SD 17.1 ± 2.5; <i>R</i> = 0.421, <i>P </i><0.001).</p>
<p><strong>Conclusion. </strong>Despite reporting high overall self-efficacy, caregivers of children
with type 1 diabetes reported greater overall stress and challenges during the
pandemic. Health care providers should be prepared to provide families with
specific social and mental health support.<b></b></p></jats:p
Videoconference based training on diabetes technology for school nurses and staff: Pilot study
Children with diabetes spend a significant portion of time at school and in school-related activities and rely on school nurses for diabetes management support. Diabetes technologies are rapidly evolving, and there are no standardized competencies or training programs for school personnel providing diabetes care.
A virtual diabetes education program was provided to school nurses and staff in 3 Florida school districts. Program feasibility was measured by attendance; acceptability was measured with a usability survey; and efficacy was measured by participants' improvements in scores on pre- and post-training knowledge assessments. Descriptive statistics were generated and improvements in knowledge were evaluated via t-test. P-values <0.05 were considered significant.
Pilot survey data (n = 91) revealed high demand for diabetes technology and basic management education among school nurses and staff. Eighty-eight school personnel from 64 schools attended the training, with 67 participants completing the demographic survey and at least one of the pre- and post-training assessments. Post-test scores demonstrated mean + 10.6% absolute improvement on the diabetes technology subscale, +11.5% on the basic management subscale, and + 10.9% on the ketone management subscale, all p < 0.001. Fifty-three participants completed the usability survey with 92% reporting they benefitted from training.
Virtual training is feasible and acceptable for delivering diabetes technology education to large numbers of school personnel. Study results demonstrate improved diabetes knowledge.
Establishing a standardized training program on diabetes technology for school personnel can optimize diabetes care in the school setting
