Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: a scoping review

BACKGROUND: Despite their potentially significant impact, cognitive disability may be overlooked in a number of progressive neurodegenerative conditions, as other difficulties dominate the clinical picture. OBJECTIVE: We examined the extent, nature and range of the research evidence relating to cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in Parkinsonian disorders, multiple sclerosis (MS), frontotemporal dementias (FTD), motor neuron disease and Huntington’s disease. METHODS: Scoping review based on searches of MEDLINE and CINAHL up to 15 March 2016. RESULTS: We included 140 eligible papers. Over half of the studies, and almost all the randomised controlled trials, related to MS, while a number of single case studies described interventions for people with FTD. CR interventions addressed functional ability, communication and interaction, behaviour or memory. The majority of psychotherapy interventions involved cognitive behavioural therapy for depression or anxiety. Self-management interventions were mainly available for people with MS. There were few reports of interventions specific to caregivers. Numerous methodological challenges were identified. CONCLUSIONS: The limited range of studies for all conditions except MS suggests a need firstly to synthesise systematically the available evidence across conditions and secondly to develop well-designed studies to provide evidence about the effectiveness of CR and other psychological interventions

Sefer ha-milim hu Ḳonḳordantsya he-ḥadash : ha-otsar kol ha-shemot ṿeha-peʻalim gam milot ha-baʼim be-sifre ḳodesh be-khol neṭiyotehem le-minehem ish ish ʻal digalo ṿe-shorsho, u-marʼeh kol meḳomot himatsʼam ba-Tanakh, ʻim pitron horaʼotehem bi-khelal ubi-feraṭ /

Mode of access: Internet

Developing and pilot testing a cognitive intervention program for persons with Multiple Sclerosis.

Developing and pilot testing a cognitive intervention program for persons with Multiple Sclerosis

The Social Value of Death Versus Disability in Israel: Why It is Better to Die for Your Country

This study seeks to understand the different ways in which Israeli media depicted Israelis killed, wounded and disabled during the first six months of the Al-Aqsa Intifada (29 September 2000 — 1 April 2001). Specifically, this paper examines how the news articles differed in content when the individual was killed versus wounded and disabled. A content analysis using terrorism search terms in Yediot Ahronot, a popular Hebrew-language newspaper in Israel, was conducted. The results illustrate a vast disparity in the number of articles written about Israelis killed versus Israelis wounded. This occurred despite the fact that for every Israeli killed, twelve more were injured during the time period of this study. Additionally, content differences existed in the news articles if individuals were killed as opposed to wounded and disabled. While this paper cannot definitively explain these differences, several possible explanations are suggested.</jats:p

The Social Value of Death Versus Disability in Israel: Why It is Better to Die for Your Country

This study seeks to understand the different ways in which Israeli media depicted Israelis killed, wounded and disabled during the first six months of the Al-Aqsa Intifada (29 September 2000 — 1 April 2001). Specifically, this paper examines how the news articles differed in content when the individual was killed versus wounded and disabled. A content analysis using terrorism search terms in Yediot Ahronot, a popular Hebrew-language newspaper in Israel, was conducted. The results illustrate a vast disparity in the number of articles written about Israelis killed versus Israelis wounded. This occurred despite the fact that for every Israeli killed, twelve more were injured during the time period of this study. Additionally, content differences existed in the news articles if individuals were killed as opposed to wounded and disabled. While this paper cannot definitively explain these differences, several possible explanations are suggested

Perceptions of Cognitive Symptoms Among People Aging With Multiple Sclerosis and Their Caregivers

Abstract OBJECTIVE. We sought to examine the nature and extent of agreement on cognitive symptoms reported by people aging with multiple sclerosis (MS) and their primary caregivers and the factors associated with disagreement. METHOD. Data were generated from telephone interviews with 279 dyads of people with MS and their caregivers. RESULTS. Eighty dyads (28.7%) disagreed about the presence of cognitive symptoms in the person with MS. Disagreeing dyads were of two types: a dyad in which the person with MS indicated no cognitive symptoms, but the caregiver did (41 dyads; 14.7%), and a dyad in which the person with MS indicated cognitive symptoms, but the caregiver did not (39 dyads, 14%). Multinomial regression showed that gender and the number of years the person with MS has experienced symptoms were associated with type of disagreement. CONCLUSION. The results point to the importance of discussing cognitive symptoms with people with MS and their caregivers.</jats:p

Effects of Cognition on Quiz Performance, Behavior Change, and Vitality After Energy Conservation Course Among People With Multiple Sclerosis

This secondary analysis of randomized control trial data evaluated the influence of cognitive abilities on the outcomes of people with multiple sclerosis (MS) who participated in a 6-week community-based energy conservation education program. Baseline measures of cognitive status included the four scales from the Neuropsychological Screening Battery for MS: Consistent Long-Term Retrieval Test (CLTR), Word List Generation Test (WLGT), Paced Auditory Serial Addition Test (PASAT), and Spatial Recall Test (SRT). Scores on knowledge quizzes, number of energy conservation strategies used postintervention, and change in SF-36 vitality subscale postintervention were analyzed via multiple regression and generalized estimating equation models. After adjusting for age, education, and sex, only SRT influenced scores on the knowledge quizzes and change in the level of vitality postintervention. CLTR, WLGT, and PASAT scores influenced the use of energy conservation strategies, after similar adjustment. In conclusion, cognitive abilities have a differential influence on outcomes in an energy conservation education program for people with MS. Actual behavior change postintervention was influenced the most by cognitive abilities.</jats:p